Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the insurance company acted like it wasn’t necessary. They cover the Kuvan medication which gives him more protein tolerance but not the medical beverage he needs to get nutrition.
Having coverage for medical formula would not only allow us to be financially stable but it would also give us peace of mind that he will always have the medicine he needs no matter what financial state we or he is in.