Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people with Very long-chain acyl-CoA dehydrogenase deficiency whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $10512 per person.

Georgia, Very long-chain acyl-CoA dehydrogenase deficiency

Canaan, Age 2

Georgia, Very long-chain acyl-CoA dehydrogenase deficiency
Canaan is a thriving, active 2-year-old boy with a rare metabolic condition called VLCAD. He lives with his parents in Georgia. He was picked up on the Expanded Newborn Screening at 6 days old and has done extremely well due to medical nutrition. When Canaan was diagnosed with VLCAD in 2016, we felt relief when...