Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people from Washington whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $8280 per person.

Phenylketonuria (PKU), Washington

Michelle

Phenylketonuria (PKU), Washington
Phenylketonuria (PKU) | Washington | Annual cost: $3000
I am very fortunate to have great coverage for medical food and formula. This has not always been the case. When I was out of school but doing my internship I had to rely on samples of formula to get me through. I was no longer eligible to be on my mother's insurance. It...
Phenylketonuria (PKU), Washington

Sarah, Age 50

Phenylketonuria (PKU), Washington
Phenylketonuria (PKU) | Washington | Annual cost: $14400
Hello, I am a 50 year old Phenylketonuria patient at the UW Medical Center. I am one of the oldest patients in the PNW. My parents were told to put me in an institution but they said no and found a pediatrician that put me in the first clinical trial for treatment of PKU....
Maple syrup urine disease, Washington

Indigo, Age 5

Maple syrup urine disease, Washington
Maple syrup urine disease | Washington | Annual cost: $4800
It scares me to think about our daughter not having access to her medical formula. This isn’t an option for her, her life depends upon it and cost shouldn’t be a barrier for her or anyone living with a metabolic disorder. It’s not an alternative lifestyle, her life depends on...
Phenylketonuria (PKU), Washington

Aiden and Aaron, Ages 5 and 3

Phenylketonuria (PKU), Washington
Phenylketonuria (PKU) | Washington | Annual cost: $2400
I have two boys with Phenylketonuria, ages 5 and 3. We moved recently from California to Washington state. In California we had state insurance coverage and it covered foods like pasta, bread mix, cake mix, tortillas. In Washington insurance companies are not required to cover any of this so approximately $1,000-2,500 worth of food...
Phenylketonuria (PKU), Washington

Jordan

Phenylketonuria (PKU), Washington
My story is a sad one. I am a parent of a PKU individual. My son was born June 17, 1985, diagnosed with PKU at 3 weeks of age. He was immediately started on a PKU formula and progressed to a diet at the appropriate ages. He was doing great, at that time I...