My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets older. I have no idea how we’ll be able to afford her formula if we buy a house or try to have a second child especially because if they...

Medical nutrition coverage has significantly reduced the cost and strain on our family's income for our daughter's food. We spend hours making her special recipes a week and approximately $150 extra a month in order to buy specific gluten free and vegan products for groceries. I cannot begin to express how much medical formula...

I am 36 years old and was diagnosed with PKU when I was 14 days old. At the time may parents were told that I could be taken off the diet at age 18 and that I might not be able to have children as it would be unsafe for them. As I grew...

I am a subscribed member to the largest employer sponsored health insurance program in the country, the Federal Employee Health Benefits Program (FEP) worth 50 billion dollars. My prescription benefit - which covered my prescribed medical food for PKU - was rescinded in the middle of the 2015 benefit year because of my age....