Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people from Illinois whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $4608 per person.

Illinois, Immunoglobulin E and non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins

Leo, Age 2

Illinois, Immunoglobulin E and non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins
Illinois | Annual cost: $9216
My son began drinking Neocate junior at 12 months. It was not covered by our insurance. All formula is excluded from out plan because it is technically an over the counter product. He became tube fed at 16 months and our insurance company would still not cover it. We went through many appeals with...
Homocystinuria, Illinois

Danae

Homocystinuria, Illinois
Homocystinuria | Illinois | Annual cost: $18000
Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the diet while trying to afford rent, utilities, tuition, health insurance, other medication, car insurance and other bills. Not to long after graduating I suffered a blood clot to the radial artery...
Illinois, Phenylketonuria (PKU)

Kelly

Illinois, Phenylketonuria (PKU)
Illinois | Phenylketonuria (PKU) | Annual cost: $15000
Having medical nutrition covered by the government would make life a lot more simple. I would have less stress and more peace of mind knowing that I don't owe a doctor or insurance company or food company an astronomical amount of money in which I may need to take out a loan. Having medical...
CROHN'S, Illinois

Jane, Age 7

CROHN'S, Illinois
CROHN'S | Illinois | Annual cost: $3960
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with Crohn’s Disease when she was 2 years old and owes her life to medical nutrition. When Jane was 2 years old she had presented to gastroenterology service for malnutrition, fatigue, anemia...
Illinois, Medical or Surgical Condition of Malabsorption, SBS

Diego, Age 9

Illinois, Medical or Surgical Condition of Malabsorption, SBS
Illinois | SBS | Annual cost: $12000
Diego is a happy and thriving 9-year-old boy from Chicago, IL with a history of intestinal atresia. This means that part of his intestine did not develop before he was born. He was on total parenteral nutrition (TPN), nutrition through his vein, for a few years. He was then transitioned to just nutrition through...