Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people with Phenylketonuria (PKU) whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $4656 per person.

New York, Phenylketonuria (PKU)

New York Teen, 17

New York, Phenylketonuria (PKU)
New York | Phenylketonuria (PKU) | Annual cost: $7200
The cost of food and formula limits many things besides medical foods themselves. Because of the high cost of formula and food, we’ve had difficulty affording supplemental educational support for our son. These costs limit what we have available to maintain our home properly. We’ve had to put off costly repairs due to not having...
Phenylketonuria (PKU), Tennessee

Isla, Age 5

Phenylketonuria (PKU), Tennessee
Phenylketonuria (PKU) | Tennessee | Annual cost: $6000
Having coverage for medical foods that my daughter requires is necessary for her success of her diet management! Without the only known management for PKU (low protein diet) my daughter would incur severe neurological issues and inability to complete daily tasks. With coverage of medical nutrition would alleviate the unnecessary stressors of the only...
Phenylketonuria (PKU), Washington

Michelle

Phenylketonuria (PKU), Washington
Phenylketonuria (PKU) | Washington | Annual cost: $3000
I am very fortunate to have great coverage for medical food and formula. This has not always been the case. When I was out of school but doing my internship I had to rely on samples of formula to get me through. I was no longer eligible to be on my mother's insurance. It...