Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people from New York whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $4440 per person.

New York, Phenylketonuria (PKU)

New York Teen, 17

New York, Phenylketonuria (PKU)
New York | Phenylketonuria (PKU) | Annual cost: $7200
The cost of food and formula limits many things besides medical foods themselves. Because of the high cost of formula and food, we’ve had difficulty affording supplemental educational support for our son. These costs limit what we have available to maintain our home properly. We’ve had to put off costly repairs due to not having...
New York, Tyrosinemia

Ethan

New York, Tyrosinemia
New York | Tyrosinemia | Annual cost: $4800
Ethan has tyrosinemia and cannot eat a regular diet. He is restricted on the amount of protein he is able to consume on a daily basis, meaning we need to purchase food and formula to meet his nutritional goals. This is costly and difficult without medical reimbursement. Our company is self employed and does...
New York, Tyrosinemia

Zoey, 15 months

New York, Tyrosinemia
New York | Tyrosinemia | Annual cost: $1200
When our daughter was diagnosed with an Inherited Metabolic Disorder at 10 days old I remember the frantic whirlwind of calls, emails, faxes and paperwork to make sure she was on my husband and my insurance plan. Not only were we trying to absorb what was happening and learn about our daughter's diagnosis, we...
Malabsorption due to liver or pancreatic disease, Medical or Surgical Condition of Malabsorption, New York

Josiah

Malabsorption due to liver or pancreatic disease, Medical or Surgical Condition of Malabsorption, New York
Josiah is an adorable baby boy who lives with his parents and older sister Middletown, New York. His story starts like that of most babies, with a relatively uneventful birth. Though Josiah was jaundiced (a yellowing of the eyes and skin) in the nursery, his family was told it would go away – after...