Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people from Georgia whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $9828 per person.

Georgia, Very long-chain acyl-CoA dehydrogenase deficiency

Canaan, Age 2

Georgia, Very long-chain acyl-CoA dehydrogenase deficiency
Canaan is a thriving, active 2-year-old boy with a rare metabolic condition called VLCAD. He lives with his parents in Georgia. He was picked up on the Expanded Newborn Screening at 6 days old and has done extremely well due to medical nutrition. When Canaan was diagnosed with VLCAD in 2016, we felt relief when...
Georgia, Long-chain L-3 hydroxyacyl-CoA dehydrogenase deficiency

Christopher, Age 9

Georgia, Long-chain L-3 hydroxyacyl-CoA dehydrogenase deficiency
Christopher is a thriving, active 9 year old boy with a rare metabolic condition called LCHADD. He lives with his parents in Atlanta. He was the first baby with LCHADD to be picked up on the Expanded Newborn Screening in 2008, and has done extremely well due to medical nutrition. When Christopher was diagnosed with...
EOSINOPHILIC DISORDERS, Georgia

Sarah

EOSINOPHILIC DISORDERS, Georgia
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was breastfed exclusively until four months old. The first time Sarah’s mom introduced rice cereal, Sarah became very ill a few hours after eating. Sarah’s pediatrician diagnosed her with a...
EOSINOPHILIC DISORDERS, Georgia

Cade

EOSINOPHILIC DISORDERS, Georgia
EOSINOPHILIC DISORDERS | Georgia | Annual cost: $5520
Cade, who lives near Atlanta, GA, was diagnosed with a cow’s milk allergy around 5 months old after he developed a rash after drinking a standard infant formula. His pediatrician recommended a standard soy-based formula.  Cade developed hives and a cough after drinking the soy formula for the first time. An allergist diagnosed Cade...