Patients and Providers for Medical Nutrition Equity Patients and Providers for Medical Nutrition Equity

PATIENTS AND PROVIDERS FOR MEDICAL NUTRITION EQUITY

These are people with Long-chain L-3 hydroxyacyl-CoA dehydrogenase deficiency whose lives are sustained by medical nutrition.

Their average annual cost for medical foods is $8400 per person.

Georgia, Long-chain L-3 hydroxyacyl-CoA dehydrogenase deficiency

Christopher, Age 9

Georgia, Long-chain L-3 hydroxyacyl-CoA dehydrogenase deficiency
Christopher is a thriving, active 9 year old boy with a rare metabolic condition called LCHADD. He lives with his parents in Atlanta. He was the first baby with LCHADD to be picked up on the Expanded Newborn Screening in 2008, and has done extremely well due to medical nutrition. When Christopher was diagnosed with...